Sökning: "LGMD2"

Hittade 1 avhandling innehållade ordet LGMD2.

1. 1. Living with recessive limb-girdle muscular dystrophy : affected young adults’ and parents’ perspectives, studied througha salutogenic framework

   Författare :Anna Carin Aho; Katarina Hjelm; Gerd Ahlström; Linnéuniversitetet; []
   Nyckelord :MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; chronic diseases; LGMD2; muscular dystrophy; parents; salutogenic; sense of coherence; young adults; Vårdvetenskap; Caring Science;

   Sammanfattning : Aim: The overall aim of this thesis, using a salutogenic framework, was to develop knowledge about experiences and perceptions of living with recessive limb-girdle muscular dystrophy and its influences on health, from the affected young adults’ and their parents’ perspectives.Methods: A qualitative explorative and descriptive study design was used. LÄS MER