Sökning: "Elin Hjorth"
Hittade 1 avhandling innehållade orden Elin Hjorth.
1. Experiences of care and everyday life in a time of change for families in which a child has spinal muscular atrophy
Sammanfattning : This thesis focuses on children with severe spinal muscular atrophy (SMA) and their families. Although the disease is severe, and the families are faced with challenges in everyday life related to the progressive muscle weakness that SMA causes, knowledge of their experiences of the situation is limited. LÄS MER
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