Sökning: "Elin Hjorth"

Hittade 1 avhandling innehållade orden Elin Hjorth.

  1. 1. Experiences of care and everyday life in a time of change for families in which a child has spinal muscular atrophy

    Författare :Elin Hjorth; Malin Lovgren; Ulrika Kreicbergs; Thomas Sejersen; Maria Björk; Ersta Sköndal Bräcke högskola; []
    Nyckelord :MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; Spinal muscular atrophy; family; advice; paediatric palliative care; health care professional; parental perception; hope; resilience; Människan i välfärdssamhället; Palliativ vård; The Individual in the Welfare Society; Palliative Care;

    Sammanfattning : This thesis focuses on children with severe spinal muscular atrophy (SMA) and their families. Although the disease is severe, and the families are faced with challenges in everyday life related to the progressive muscle weakness that SMA causes, knowledge of their experiences of the situation is limited. LÄS MER