Sökning: "biobank ethics"

Hittade 3 avhandlingar innehållade orden biobank ethics.

  1. 1. Biobank Research : Individual Rights and Public Benefit

    Författare :Joanna Stjernschantz Forsberg; Stefan Eriksson; Mats G. Hansson; Angus Dawson; Uppsala universitet; []
    Nyckelord :MEDICIN OCH HÄLSOVETENSKAP; MEDICAL AND HEALTH SCIENCES; Biobank; Ethics; Consent; Returning results; Individual rights; Public good; Medicinsk vetenskap; Medical Science;

    Sammanfattning : The aim of this thesis is to investigate the relationship between individuals and society in the context of healthcare and medical research, more specifically concerning the rights and duties of individuals in regard to biobank-based research. My starting point is that we all have a strong vested interest in improved healthcare, and therefore the possibilities to conduct important research should be optimized. LÄS MER

  3. 2. Trust in Biobank Research : Meaning and Moral Significance

    Författare :Linus Johnsson; Mats G. Hansson; Gert Helgesson; Stefan Eriksson; Berge Solberg; Uppsala universitet; []
    Nyckelord :TEKNIK OCH TEKNOLOGIER; ENGINEERING AND TECHNOLOGY; Biobank; biobank research; bioethics; biobank ethics; research ethics; trust; trustworthiness; moral responsibility; informed consent; ethics review; ethics guidelines; Bioetik; Bioethics;

    Sammanfattning : What role should trust have in biobank research? Is it a scarce resource to be cultivated, or does its moral significance lie elsewhere? How does it relate to the researcher’s individual responsibility?In this thesis I draw four general conclusions. First, trust is still very much present in at least some biobanking settings, notably in Sweden, but possibly also internationally. LÄS MER

  4. 3. Biobanks and informed consent : An anthropological contribution to medical ethics

    Författare :Klaus Hoeyer; Paul Martin; Umeå universitet; []
    Nyckelord :Medical ethics; empirical ethics; social anthropology; policy; informed consent; stored human tissue; etik; Ethics;

    Sammanfattning : Background: 1985 saw the beginnings of a population-based biobank in Västerbotten County, Sweden. In 1999, a start-up genomics company, UmanGenomics, obtained ‘all commercial rights’ to the biobank. The company introduced an ethics policy, which was well received in prestigious journals, focusing on public oversight and informed consent. LÄS MER