Multiprofessional rehabilitation for women with fibromyalgia : : Quantitative and qualitative studies

Sammanfattning: The overall aims of the present work were to obtain further knowledge of the effects ofmultiprofessional rehabilitation programmes for women with fibromyalgia (FM) or chronicwidespread musculoskeletal pain (CWMP) and to elucidate what strategies women with FMuse and find successful in controlling their symptoms. The underlying purpose was toimprove rehabilitation further and thereby increase the possibilities for these women to liveactively, return to work and continue working. The Study I was a prospective, non-randomised intervention trial with 43 women with FM orCWMP who were assigned consecutively to a multi-professional rehabilitation programme orto a waiting-list control group. Comparisons were made of e.g. movement quality. Study IIwas an exploratory analytical study where 16 of the women from study I were interviewed.Grounded theory analysis was used to explore what the women remembered and what theyhad gained from the rehabilitation programme one year after discharge. Study III, anexploratory analytical study with emergent design, explored what strategies 12 women atwork despite FM used to control pain, fatigue and other symptoms. Data was collected withdiaries, focus group discussions and interviews, and processed using content analysis and grounded theory. Study IV was a prospective, non-randomised intervention trial, wheremuscle activity in the trapezius, infraspinatus and extensor digitorum were measured withsurface EMG during one work task and three domestic tasks before and after a rehabilitationprogramme, in 16 women with FM and in 10 healthy controls. Pain intensity and perceivedexertion were rated after every task. The interventional rehabilitation programmes improved quality of movement assessed withbody awareness scale - health, reduced experience of vegetative disturbances in women withFM/CWMP (study I) and enabled FM women to perform tasks with decreased muscle activity(study IV). A decrease in perceived exertion coincided with the decrease in muscle activity.During the rehabilitation programme, the women with FM/CWMP followed a process from shame to respect . They began to listen to their bodies, setting limits and improving in selfimage (study II). To manage work despite FM, the women fought a constant struggle against the consequences of their illness and prejudices in their surroundings (study III). They had brought a positive spirit to a variety of active strategies. To manage the struggle the women emphasised the importance of having grieved the loss of the way they used to live their lives. Support from others, especially their families, facilitated the struggle. The studies demonstrate that women with FM/CWMP can benefit from multiprofessional rehabilitation in various ways, e.g. with a change in their movement behaviour towards an increased general movement quality, and the ability to perform tasks with a decreased muscle activity in shoulder-arm muscles. A respectful encounter with staff and with others in the same situation, together with body awareness training, might help women with FM/CWMP to begin respecting their own limits and to change positively in self-image. Many strategies, e.g. setting limits, taking care of one-self and being knowledgeable were described as valuable for managing pain and other symptoms.